
Neonatal Alloimmunethrombocytopenia. What a mouthful. That lovely disease is consuming our days and nights and money and energy and everything else! I have been going to the hospital once a week to get about 150 grams of immunoglobulin through an I.V. (which is made up from about 20,000 donors). I go one Tuesdays and am wiped out by the time I leave, as it takes about 7 hours to transfuse. Wednesdays are spent in bed. Thursdays are spent in bed. Fridays are iffy, but tend to be good by the evening. Saturdays, Sundays and Mondays are awesome. So, let me tell you some great things! My mom and dad have totally sacrificed so much for us. My mom moved in with us a month ago and takes the children Tuesdays through Fridays, cleans, cooks, plays and does every other up-and-above thing you can think of. My dad flies here every other weekend so they can see each other and he can spend time with the kids. We couldn't do this without them. We couldn't do this without the prayers on our behalf, without the people thinking about us and fasting for us. This has been an amazing experience- so humbling... so so humbling. Thank you. I am so grateful for the people who make life worth living and making a life for! Thanks Grandma and Grandpa!
7 comments:
I am so glad teat your great Mom is there for you for these months! I am sure your kiddos are loving it!!! And I hope you know that you have so many others who would do anything you need!
OH, Sarah!! What a trial-- I'm sure 9 months is going too slowly. Good LUCK!
Sarah! Oh. I left you a message cuz I needed some of your past wisdom on teaching kids, etc, etc. But I had NO idea you were going through this. I hope all will be well, and you will be in my prayers. I wish I was still around to help out!
Oh. Almost forgot. Don't worry about calling me! You sound like you have way to much right now!
Sarah, our prayers are with you. I am so sorry that you are going through this. What a blessing your mom is! Good luck with everything.
our prayers are with you guys. if you need to vent, i'm here. we sure miss your mom here but know she's needed there.
love ya!!
Hang in there!! I wish I was there to help out. Your kids are so cute and fun. What's your due date??
Post a Comment